A place for facts and information about Chronic Thromboembolic Pulmonary Hypertension (CTEPH)
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The information provided on this site is intended for people living with CTEPH or those caring for someone with CTEPH
It cannot be emphasized enough that diagnosis and assessment for operability must be carried out by experienced healthcare professionals at expert centers.1
Screening for CTEPH is not common practice. In a pulmonary hypertension (PH) registry, 43% of patients with pulmonary arterial hypertension (PAH) were diagnosed without a ventilation/perfusion (V/Q) scan.2
Screening PH with computer tomography pulmonary angiography (CTPA) often doesn’t recognize CTEPH.3
Patients with CTEPH can present without a history of deep vein thrombosis (DVT) or pulmonary embolism (PE).4
Failure to refer to an expert PH center may result in a patient being wrongly assessed as inoperable.1
Our resources page contains a range of material to help with the identification, diagnosis and management of CTEPH.
A list of expert centers can be found here.
1. Jenkins D et al. Eur Respir Rev 2012;21:32–9. 2.McLaughlin VV et al. Chest 2013;143:324–32. 3.Galiè N et al. Eur Respir J 2015; 46: 903–75. 4.Pepke-Zaba J et al. Circulation 2011;124:1973–81.