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Patient Stories

Hear personal stories and real-life experiences of people living with chronic thromboembolic pulmonary hypertension (CTEPH).

Watch Jessica's CTEPH diagnosis story

People who've been treated for pulmonary embolism (PE) and still have symptoms after 3 months could have CTEPH.

Three real CTEPH patients tell their stories

Whether you're undergoing diagnostic tests or preparing for surgery, everyone's CTEPH journey can be different.

Three patients share PTE surgery and recovery milestones

From diagnosis to recovery, pulmonary thromboendarterectomy (PTE) surgery for CTEPH involves a series of important steps and decisions.

I knew something was wrong when...

Greg's shortness of breath eventually led to his diagnosis of CTEPH.

Imaging tests can make the diagnosis...

Harry's CTEPH was found after proper screening, starting with a ventilation/perfusion (V/Q) scan.

Symptoms of CTEPH are common to a lot of other lung diseases

Arlene's symptoms were attributed to asthma, delaying CTEPH treatment.